Contact: Rare Diseases

If you have a question about a rare disease, you can contact us by completing the form below. You will receive confirmation that we have received your request, which will be processed as soon as possible.

Contact form
Age group
Place of residence
You are
Have you (or the patient on whose behalf you are acting) already received a rare disease diagnosis?
What type of assistance do you want (several possible replies)?

The information given on this form is recorded in a computer file by Brussels University Hospital for the sole purpose of contacting the team at the Rare Diseases Function.

It is destined for the coordinators of this Rare Diseases Function. The information shall be retained for the periods imposed by the law and implementing regulations.

Your data will be processed in accordance with the legislation (General Data Protection Regulation). You can exercise your right to request the erasure of your data, access to your data or correction of your data by contacting the data protection officer by email at the following address:  dpo [at] chubruxelles [dot] be (dpo[at]hubruxelles[dot]be).